Belfast Rare Disease Day 2011

It is Rare Disease Day # 2 for Northern Ireland, after the great sucess of last years Rare Disease Day Belfast is showing the world once more it cares about their children and rare diseases. The gates are open and Northern Ireland has seen groups who want to be involved ,The Cavan Tommy Hoey Trust Ireland has lead the fight against the nightmare of rare diseases in raising funds and bringing about awareness. 2009 has been a year of ups and downs for Cavan, our little grandson who has become the name and face of rare diseases. Cavan is still showing the world his true grit in the fight against rare disease he shows just what it is to fight something as big as rare disease, he cares about his fellow human being and still has the time to ask you how you are feeling,this little boy is so very brave just like all the other little children all over the world fighting rare diseases, they are showing us all and shouting out loud we are here and we have rights too,the need for funding rare disease is urgent and is needed now, the necessity for research is needed and needed now, the need for more information and the need is now,Rare Disease needs funding and it needs it now, Belfast is known all over the world  for its peace process, it has lead the way in understanding and the meaning of talking. Northern Ireland must now lead the way in showing the world just how much we care about rare disease, we must lead the world by getting our greatest asset Queens Universtisty  involved in the search for cures against rare diseases, we must lead the way as we have have in the past. We have some of the greatest people in Northern Ireland who are world leaders in research, we just need them to come forward in the fight against Rare Disease.The Cavan Tommy Hoey Trust knows that Northern Ireland could make the difference in the fight against rare diseases in leading the way for the rest of the world, and the united kindom, in patient care and family support the need is great, and the need is now. The Cavan Tommy Hoey Trust  pleads to the people of Northern Ireland to show the rest of the world and the united kindom  we care about Children with Rare Diseases, "Why because we know we can do this and the need is great"